Thursday, December 01, 2016

December 1

Back at it again with the December Photo Project.

We are currently in SC for a family visit and today started with a fun tea party at breakfast then we explored the Botanical Garden in Clemson.

December 1 is also one of my favorite days of the year now, because I get to be extra thankful that this guy joined our family. He has been such a joy and I am just so thankful he is part of our family. I think we have a future birder on our hands.

Saturday, August 06, 2016

One Year

Almost exactly one year ago today, we left CHOP with our little baby, his belly nearly dissected by a bright red line and a small tube that marred his pale skin. In our bag we had to carry a vial of medication, syringes, a glucometer, a plastic red case containing his emergency glucagon injection, and a letter written by our doctors to take with us to the ER in an emergency.

I was ecstatic, yes, to be finally leaving, but also a little terrified. I wondered that day how many ER visits we would have, if we would be constantly fighting against dangerous lows, as we had been doing in the hospital, and if I would ever have to stab my sweet boy with the emergency glucagon.

Over this last year, we have had some doctor's visits, of course, but the only ER trip happened when his G-tube fell out and I couldn't replace it. His blood sugars have, for the most part, been very stable as his medication and treatment regimen has continued to work well for him. And the recent refill I needed of glucagon was only because the first dose we got has now expired.

I don't know what his HI will look like in the future, but right now I am so thankful this year has been so normal.

Early last spring we started planning and talking about visiting some national parks, but once Ezra got sick, our entire summer was spent at the hospital. I felt like we had lost our whole summer to this disease, and it made me sad.

This summer has felt like such a redemption. Last week we returned from a two week road trip that included 7 nights of camping in three different national parks. We dragged Ezra's dextrose and pump with us, and he had a great time throwing rocks, getting dirty, and splashing in creeks all over the state.

The older two kids had a great time also with the s'mores and the campfires and the creeks.

We loved our time away, but as always, it was nice to get back home.

Thursday, December 24, 2015

December 24

We had our family Christmas tonight since we are heading to the airport around breakfast tomorrow. It was great - the kids loved the gifts and looked adorable in their matching jammies.

Wednesday, December 23, 2015

December 23

All the trip preparations have been leaving me rather stressed - trying to get packed with clean laundry and have the house clean has been a lot to do on top of working every day this week to make up for the time I'm missing next week. I know it will all be worth it when we are with our family, but today I feel like the last two days have basically consisted of me being grumpy with my kids, cleaning, laundry, and more cleaning. And the house still feels messy. Sigh.

But after naps today I took a little break to play. We broke out some new sidewalk chalk, and Ezra earned his spot as a sous chef in our play kitchen. I made noodles and peas for dinner, which no one whined about, so I'd say the day ended on an upswing. The first photo was shot by Judah. And is easily better than any other picture I took today.

(except maybe for this last one. Cause, I mean, those blue eyes.)

December 22

Things aren't always beautiful around here. These two pictures sort of sum up my day, if you throw in several hours of taking care of newborn babies and hospitalized children. I am really looking forward to vacation.

Sunday, December 20, 2015

December 20

We were in the nursery today, and I had never noticed how nice the light gets in there, with a big translucent window. We are thankful for some new members at church and another baby baptism today.

December 19: It rained and we had a party.

 Our church might be small, but we know how to throw a good party.

Saturday, December 19, 2015

December 18: She's 3!

I can't believe my girl is three. I am thankful for this girl, what she brings to our family, and all the ways she stretches me as a mom.